Freddie van Mierlo MP - Parliament Clip

Mr. Speaker, Oxford University Hospitals Trust is one of just three trusts not providing Givinostat for Duchenne through the early access program last week I attended a roundtable where one of my constituents attended Alex advocating on behalf of his son Ben who isn't getting the treatment we discussed lessons learned from this Early Access Program will he meet with me Duchen UK and the APPG for access to medicines and medical devices so that we can share with him those lessons Mr. Speaker I have had the privilege of meeting some of the campaigners and particularly young people affected by this cruel condition I understand the frustrations he has I know that the medication it